Photo: Lokmat.com
Boy Wins Life Saving Injection Of Rs 16 Cr In Lucky Draw
Shivraj Daware suffering from a rare genetic disorder called Spinal Muscular Atrophy was given a life-saving injection worth Rs 16 crore by the US firm for free after winning the lucky draw. Reportedly, the family applied for the lucky draw announced by a US firm. Luckily, they won the injection last year, and was administered in January 2021. Shivraj will soon be celebrating his second birthday.
Tags: Genetic Disorder, Spinal Muscular Atrophy, Recovered, birthday, Lucky Draw
Courtesy: NDTV
Photo: Times Now
Saving 5-Month-Old, Centre Waives Off Rs 6 Cr On Imported Medicine
Making treatment of 5-year-old Teera Kamat affordable, the central government has agreed to waive import duty and GST worth Rs 6 crore on her medicines. The Mumbai-based girl, reportedly, suffers from Spinal Muscular Atrophy, treatment of which lies in Zolgensma medicine that costs Rs 16 crore. Earlier, former Maharashtra CM Devendra Fadnavis had written to the Centre for the waiver after Teera's parents had requested on social media for… read-more
Tags: Government of India, Devendra Fadnavis, Teera Kamat, Mumbai, Spinal Muscular Atrophy, Zolgensma
Courtesy: Deccan Herald
